People with rare skin condition challenge ‘conventional perceptions of beauty’ in photography exhibition – The Independent

People with rare skin condition challenge ‘conventional perceptions of beauty’ in photography exhibition – The Independent

March 15, 2019 Off By readly




A new exhibition celebrating men and women born with an untreatable skin condition has gone on display in London.

On Thursday, a series of photos titled “How Do You C Me Now?” were exhibited at the Oxo Tower Wharf to inspire the world “to love the skin you are in”.

The models featured in the photos, taken by London-based photographer Brock Elbank, live with a potentially life-threatening skin condition called congenital melanocytic naevus (CMN).

We’ll tell you what’s true. You can form your own view.

From 15p €0.18 $0.18 USD 0.27 a day, more exclusives, analysis and extras.

According to the National Organisation of Rare Disorders (NORD), CMN are visible pigmented proliferations in the skin that are present at birth that can cover up to 80 per cent of the body. CMN are a known risk factor for melanoma - a type of cancer that develops from the pigment-containing cells.

“CMN can be light brown to black patches or plaques, can present in variable ways, and cover nearly  any size surface area or any part of the body,” NORD states.

Shape Created with Sketch. Congenital skin conditions presented in empowering photography exhibit

Show all 10

left Created with Sketch. right Created with Sketch.

Shape Created with Sketch. Congenital skin conditions presented in empowering photography exhibit

1/10 Gemma Whyatt

On Thursday, a series of photos titled “How Do You C Me Now?” were exhibited at the Oxo Tower Wharf in London to inspire the world “to love the skin you are in”

Brock Elbank/SWNS

2/10 Frederik Port

The models featured in the photos, taken by London-based photographer Brock Elbank, live with a potentially life-threatening skin condition called congenital melanocytic naevus (CMN)

Brock Elbank/SWNS

3/10 Rosabella Harrison

According to the National Organisation of Rare Disorders (NORD), CMN are visible pigmented proliferations in the skin that are present at birth that can cover up to 80 per cent of the body. CMN are a known risk factor for melanoma – a type of cancer that develops from the pigment-containing cells

Brock Elbank/SWNS

4/10 You Kang Wu

“CMN can be light brown to black patches or plaques, can present in variable ways, and cover nearly any size surface area or any part of the body,” NORD states

Brock Elbank/SWNS

5/10 Callum White

Small to medium CMN are predicted to occur in more than one in a 100 births while large and especially giant CMN (covering a a predicted diameter at adult age of at least 20 cm on the body) are estimated to present themselves in around 1 in 50,000 births

Brock Elbank/SWNS

6/10 Yulianna Yuseff

The exhibition, which is being supported by UK CMN charity Caring Matters Now, has been presented throughout 30 different portraits and aims to challenge “conventional perceptions of beauty”

Brock Elbank/SWNS

7/10 Alkin Emirali

A spokesperson from Caring Matters Now says: “People with CMN often feel isolated due to the rarity of the condition and have to deal with negative comments because of their visible difference, resulting in low self-esteem”

Brock Elbank/SWNS

8/10 Agnieszka Palyska

Several of the individuals photographed for the exhibition have never shown their birthmarks in public before.

Brock Elbank/SWNS

9/10 Mariana Mendes

“In a world where people work hard to stand out from the crowd, ‘How Do You C Me Now?’ aims to celebrate diversity and educate the public about this rare condition,” a spokesperson from the charity added

Brock Elbank/SWNS

10/10 Gemma Whyatt

Admission to the exhibition is free and will run for 10 days before touring the world

Brock Elbank/SWNS

1/10 Gemma Whyatt

On Thursday, a series of photos titled “How Do You C Me Now?” were exhibited at the Oxo Tower Wharf in London to inspire the world “to love the skin you are in”

Brock Elbank/SWNS

2/10 Frederik Port

The models featured in the photos, taken by London-based photographer Brock Elbank, live with a potentially life-threatening skin condition called congenital melanocytic naevus (CMN)

Brock Elbank/SWNS

3/10 Rosabella Harrison

According to the National Organisation of Rare Disorders (NORD), CMN are visible pigmented proliferations in the skin that are present at birth that can cover up to 80 per cent of the body. CMN are a known risk factor for melanoma – a type of cancer that develops from the pigment-containing cells

Brock Elbank/SWNS

4/10 You Kang Wu

“CMN can be light brown to black patches or plaques, can present in variable ways, and cover nearly any size surface area or any part of the body,” NORD states

Brock Elbank/SWNS

5/10 Callum White

Small to medium CMN are predicted to occur in more than one in a 100 births while large and especially giant CMN (covering a a predicted diameter at adult age of at least 20 cm on the body) are estimated to present themselves in around 1 in 50,000 births

Brock Elbank/SWNS

6/10 Yulianna Yuseff

The exhibition, which is being supported by UK CMN charity Caring Matters Now, has been presented throughout 30 different portraits and aims to challenge “conventional perceptions of beauty”

Brock Elbank/SWNS

7/10 Alkin Emirali

A spokesperson from Caring Matters Now says: “People with CMN often feel isolated due to the rarity of the condition and have to deal with negative comments because of their visible difference, resulting in low self-esteem”

Brock Elbank/SWNS

8/10 Agnieszka Palyska

Several of the individuals photographed for the exhibition have never shown their birthmarks in public before.

Brock Elbank/SWNS

9/10 Mariana Mendes

“In a world where people work hard to stand out from the crowd, ‘How Do You C Me Now?’ aims to celebrate diversity and educate the public about this rare condition,” a spokesperson from the charity added

Brock Elbank/SWNS

10/10 Gemma Whyatt

Admission to the exhibition is free and will run for 10 days before touring the world

Brock Elbank/SWNS

Small to medium CMN are predicted to occur in more than one in a 100 births while large and especially giant CMN (covering a a predicted diameter at adult age of at least 20 cm on the body) are estimated to present themselves in around 1 in 50,000 births.

The exhibition, which is being supported by UK CMN charity Caring Matters Now, has been presented throughout 30 different portraits and aims to challenge “conventional perceptions of beauty”. 

A spokesperson from Caring Matters Now says: “People with CMN often feel isolated due to the rarity of the condition and have to deal with negative comments because of their visible difference, resulting in low self-esteem.”

Models featured in the exhibition include seven-year-old Rosabella Harrison from Southport and 26-year-old Yulianna Yusef from Ukraine.

Several of the individuals photographed for the exhibition have never shown their birthmarks in public before.

“In a world where people work hard to stand out from the crowd, ‘How Do You C Me Now?’ aims to celebrate diversity and educate the public about this rare condition,” a spokesperson from the charity added.

This isn’t the first time the exhibition’s photographer has focussed on physical features of models.

Support free-thinking journalism and subscribe to Independent Minds

In 2015, Elbank produced a series titled “Beard” which featured 80 bearded models and was exhibited at Somerset House.  

Admission to the exhibition is free and will run for 10 days before touring the world.

Source of this (above) article: https://www.independent.co.uk/life-style/fashion/skin-condition-photos-exhibition-congenital-melanocytic-naevus-cmn-london-beauty-a8822321.html